Best Practice & Research Clinical Endocrinology & Metabolism
Volume 24, Issue 2 , Pages 325-334 , April 2010

Psychosocial and psychosexual aspects of disorders of sex development

References 

  1. Hughes IA, Houk C, Ahmend SF, et al. Consensus statement on management of interest disorders. Archives of Disease in Childhood. 2006;91:554–563
  2. Meyer.Bahlburg HFL. Variants of gender differentiation in somatic disorders of sex development. Int J Transgenderism, in press.
  3. Martin CL, Ruble DN, Szkrybalo J. Cognitive theories of early gender development. Psychological Bulletin. 2002;128:903–933
  4. Egan SK, Perry DG. Gender identity: a multidimensional analysis with implications for psychosocial adjustment. Developmental Psychology. 2001;37:451–463
  5. Money J. Lovemaps: Clinical concepts of sexual/erotic health and pathology, paraphilia, and gender transposition in childhood, adolescence, and maturity. New York: Irvington, 1986.
  6. Ruble DN, Martin CL, Berenbaum SA. Gender development. In:  Damon W,  Lerner RM,  Eisenberg N editor. Handbook of child psychology. 6th ed. Social, emotional, and personality development. vol. 3:New York: Wiley; 2006;p. 858–932
  7. Fisk NM. Gender dysphoria syndrome: the conceptualization that liberalizes indications for total gender reorientation and implies a broadly based multi-dimensional rehabilitative program. The Western Journal of Medicine. 1974;120:386–391
  8. Bockting WO. Psychotherapy and the real-life experience: from gender dichotomy to gender diversity. Sexologies. 2008;17:211–224
  9. American Psychiatric Association . Diagnostic and statistical manual of mental disorders. 4th ed.. Washington: Author; 2000;
  10. Berenbaum SA. Psychological outcome in children with disorders of sex development: implications for treatment and understanding typical development. Annual Review of Sex Research. 2006;17:1–38
  11. Cohen-Kettenis PT. Psychological long-term outcome in intersex conditions. Hormone Research. 2005;64:27–30
  12. Dessens AB, Slijper FME, Drop SLS. Gender dysphoria and gender change in chromosomal females with congenital adrenal hyperplasia. Archives of Sexual Behavior. 2005;34:389–397
  13. de Vries ALC, Doreleijers THAH, Cohen-Kettenis PT. Disorders of sex development and gender identity outcome in adolescence and adulthood: understanding gender identity development and its clinical implications. Pediatric Endocrinology Reviews. 2007;4:343–351
  14. Meyer-Bahlburg HFL, Dolezal C, Baker SW, et al. Gender development in women with congenital adrenal hyperplasia as a function of disorder severity. Archives of Sexual Behavior. 2006;35:667–684
  15. Imperato-McGinley J, Peterson Gautier T, Sturla E. Androgens and the evolution of male-gender identity among male pseudohermaphrodites with 5-alpha-reductase deficiency. The New England Journal of Medicine. 1979;300:1233–1237
  16. Richter-Appelt H, Discher C, Gedrose B. Gender identity and recalled gender related childhood play-behaviour in adult individuals with different forms of intersexuality. Anthropologischer Anzeiger. 2005;63:241–256
  17. Hines M, Ahmed SF, Hughes IA. Psychological outcomes and gender-related development in complete androgen insensitivity syndrome. Archives of Sexual Behavior. 2003;32:93–101
  18. Mazur T. Gender dysphoria and gender change in androgen insensitivity or micropenis. Archives of Sexual Behavior. 2005;34:411–421
  19. Meyer-Bahlburg HFL. Gender identity outcome in female-raised 46, XY persons with penile agenesis, cloacal exstrophy of the bladder, or penile ablation. Archives of Sexual Behavior. 2005;34:423–438
  20. Meyer-Bahlbug HFL. Treatment guidelines for children with disorders of sex development. Neuropsychiatrie de l' Enfance et de l' Adolescence. 2008;56:345–349
  21. Thyen U, Krege S. Netzwerk DSD/Intersexualität. Der Urologe. Ausg. A. 2007;46:1304–1306
  22. Kazak AE, Cant MC, Jensen MM, et al. Identifying psychosocial risk indicative of subsequent resource use in families of newly diagnosed pediatric oncology patients. Journal of Clinical Oncology. 2003;21:3220–3322
  23. Lang C, Kuhnle U. Intersexuality and alternative gender categories in Non-Western cultures. Hormone Research. 2008;69:240–250
  24. Wiener L, Mellins CA, Marchefka S, et al. Disclosure of a HIV diagnosis to children: history, current research, and future directions. Journal of Developmental and Behavioral Pediatrics. 2007;28:155–166
  25. Harbeck-Weber C, Fisher JL, Dittner CA. Promoting coping and enhancing adaptation to illness. In:  Roberts MC editors. Handbook of pediatric psychology. 3rd ed. New York, London: The Guilford Press; 2003;p. 99–118
  26. Ismail I, Creighton S. Surgery for intersex. Reviews in Gynaecological Practice. 2005;5:57–64
  27. Schönbucher V, Schweize K, Rustige L, Schützmann.K, Brunner F, Richter-Appelt H. Sexual Quality of life of individuals with 46, XY disorders of sex development. The Journal of Sexual Medicine, in press.
  28. Kuhnle U, Bullinger M, Schwarz HP. The quality of life in adult female patients with congenital adrenal hyperplasia: A comprehensive study of the impact of genital malformations and chronic disease on female patients' life. European Journal of Pediatrics. 1995;154:708–716
  29. Slijper FME, van der Kamp HJ, Brandenbrug H, et al. Evaluation of psychosexual development of young women with congenital adrenal hyperplasia: A pilot study. Journal of Sex Education & Therapy. 1992;18:200–207
  30. Zucker KJ, Bradley SJ, Oliver G, et al. Psychosexual development of woman with congenital adrenal hyperplasia. Hormones and Behavior. 1996;30:300–318
  31. Hines M, Brook C, Conway GS. Androgen and psychosexual development: core gender identity, sexual orientation, and recalled gender role behaviour in women and men with congenital adrenal hyperplasia (CAH). Journal of Sex Research. 2004;41:75–81
  32. Mendonca BB, Inacio M, Costa EM, et al. Male pseudohermaphroditism due to steroid 5-alpha-reductase 2 deficiency: diagnosis, psychological evaluation, and management. Medicine (Baltimore). 1996;7:64–761996
  33. Lewis VG, Money J. Gender identity/role: G-I/R Part A: XY androgen-insensitivity syndrome and XX Rokitansky syndrome of vaginal atresia compared. In:  Dennerstein L,  Burrows G editor. Handbook of psychosomatic obstetrics and gynaecology. Amsterdam: Elsevier Biomedical Press; 1983;p. 51–60
  34. Masica DN, Ehrhardt AA, Money J. Fetal feminization and female gender identity in the testicular feminizing syndrome of androgen insensitivity. Archives of Sexual Behavior. 1971;1:131–142
  35. Money J, Ehrhardt AA, Masica DN. Fetal feminization by androgen insensitivity in the testicular feminizing syndrome. Effect on marriage and maternalism. The Johns Hopkins Medical Journal. 1968;123:105–114
  36. Meyer WJ, Bockting WO, Cohen-Kettenis PT, et al. The Harry Benjamin international gender dysphoria association's standards of care for gender identity disorders, sixth version. Journal of Psychology & Human Sexuality. 2001;13:1–30
  37. Zucker KJ, Lawrence AA. Epidemiology of gender identity disorder. International Journal of Transgenderism. 2009;11:8–18
  38. Zucker KJ. Measurement of psychosexual differentiation. Archives of Sexual Behavior. 2005;34:375–388
  39. Pleak R. Ethical issues in diagnosing and treating gender-dysphoric children and adolescents. In:  Rottnek M editors. Sissies & tomboys: gender nonconformity & homosexual childhood. New York: New York University Press; 1999;p. 34–51
  40. Menvielle EJ, Tuerk C. A support group for parents of gender non-conforming boys. Journal of the American Academy of Child and Adolescent Psychiatry. 2002;41:1010–1013
  41. Zucker KJ, Cohen-Kettenis PT. Gender identity disorder in children and adolescents. In:  Rowland DL,  Incrocci L editor. Handbook of sexual and gender identity disorders. New York: Wiley & Sons; 2008;p. 376–422
  42. Di Ceglie D. Management and therapeutic aims with children and adolescents with gender identity disorders and their families. In:  DiCeglie D,  Freedman D editor. A stranger in my own body: atypical gender identity. Development and Mental Health London: Karnac; 1998;
  43. Hembree WC, Cohen-Kettenis PT, Delemarre-van de Waal HA, et al. Endocrine treatment of transsexual persons: an endocrine society clinical practice guideline. The Journal of Clinical Endocrinology and Metabolism. 2009;94:3132–3154
  44. Bowman C, Goldberg JM. Care of the patient undergoing sex reassignment surgery (SRS) Vancouver, BC, Canada: vancouver Coastal Health Authority. http://www.vch.ca/transhealth/resources/library/tcpdocs/guidelines-surgery.pdf2005;

PII: S1521-690X(09)00146-8

doi: 10.1016/j.beem.2009.11.005

Best Practice & Research Clinical Endocrinology & Metabolism
Volume 24, Issue 2 , Pages 325-334 , April 2010