Best Practice & Research Clinical Endocrinology & Metabolism
Volume 24, Issue 2 , Pages 187-195 , April 2010

Impact of the consensus statement and the new DSD classification system

  • V. Pasterski, PhD (Research Psychologist)

      Affiliations

    • Department of Paediatrics, Addenbrooke's Hospital, University of Cambridge, Level 8, Box 116, Hills Road, Cambridge, CB2 0QQ, UK
    • Corresponding Author InformationCorresponding author. Tel.: +44 1223 767 183; Fax: +44 (0) 1223 336996.
    • ,
  • P. Prentice, BA, MBChir (ST2 Paediatrics)

      Affiliations

    • Whittington Hospital, University College London, London, UK
    • ,
  • I.A. Hughes, MD, FRCP, FRCPCH, F. Med. Sci. (Professor of Paediatrics, Head of Department)

      Affiliations

    • Department of Paediatrics, Addenbrooke's Hospital, University of Cambridge, Level 8, Box 116, Hills Road, Cambridge, CB2 0QQ, UK

References 

  1. Achermann JC, Hughes IA. Disorders of sex development. In:  Larsen PR,  Kronenbery HM,  Melmed S, et al. editor. Williams textbook of endocrinology. Philadelphia: Saunders; 2007;
  2. Clayton PE, Miller WL, Oberfield SE, et al. Consensus statement on 21-hydroxylase deficiency from the Lawson Wilkins Pediatric Endocrine Society and the European Society for Pediatric Endocrinology. The Journal of Clinical Endocrinology and Metabolism. 2002;87:4048–4053
  3. Hughes IA, Houk C, Ahmed SF, et al. Consensus statement on management of intersex disorders. Journal of Pediatric Urology. 2006;2(3):148–162
  4. Houk CP, Hughes IA, Ahmed SF, et al. Summary of consensus statement on intersex disorders and their management. International Intersex Consensus Conference. Pediatrics. Aug 2006;118(2):753–757
  5. Hughes IA, Houk C, Ahmed SF, et al. Consensus statement on management of intersex disorders. Archives of Disease in Childhood. 2006;91:554–563
  6. Pasterski V, Prentice P, Hughes IA. Consequences of the Chicago Consensus on the management of disorders of sex development (DSD). Archives of Disease in Childhood (in press).
  7. Simmonds M. Was “variations of reproductive development” considered?. Archives of Disease in Childhood. 2007;92(1):89
  8. Damiani D, Guerra-Júnior G. As novas definições e classificações dos estados intersexuais: o que o Consenso de Chicago contribui para o estado da arte? (New definitions and classifications of the intersexual states: in which the Chicago Consensus has contributed to the state of the art?), Arquivos Brasileiros De Endocrinologia E Metabologia. 2007;51(6):1013–1017
  9. Johannsen TH, Ripa CPL, Mortensen EL, et al. Quality of life in 70 women with disorders of sex development. European Journal of Endocrinology. 2006;155(6):877
  10. Vilain E, Achermann JC, Eugster EA, et al. We used to call them hermaphrodites. Genetics in Medicine. 2007;9(2):65
  11. Holterhus PM, Bebermeier JH, Werner R, et al. Disorders of sex development expose transcriptional autonomy of genetic sex and androgen-programmed hormonal sex in human blood leukocytes. BMC Genomics. Jul 1 2009;10(1):292
  12. Hughes IA. The testes. In:  Sperling MA editors. Pediatric endocrinology. Philidelphia: Elsevier; 2008;
  13. Wit JM, Ranke MB, Kelnar CJH. ESPE classification of paediatric endocrine diagnoses. Hormones Research. 2007;26(Suppl. 1):51–52
  14. Hughes IA, Nihoul-Fekete C, Thomas B, et al. Consequences of the ESPE/LWPES guidelines for diagnosis and treatment of disorders of sex development. Best Practice & Research. Clinical Endocrinology & Metabolism. Sep 2007;21(3):351–365
  15. Pasterski V, Golombok S, Hines M. Sex differences in social development. In:  Smith PK,  Hart CH editor. Blackwell handbook of childhood social development. 2nd ed.. Oxford: Blackwell Publishing; 2009;
  16. Sutton EJ, Young J, McInerney-Leo A, et al. Truth-telling and Turner syndrome: the importance of diagnostic disclosure. The Journal of Pediatrics. 2006;148(1):102–107
  17. Starke M, Moller A. Parents' needs for knowledge concerning the medical diagnosis of their children. Journal of Child Health Care. 2002;6(4):245
  18. Carmichael P, Ransley P. Telling children about a physical intersex condition. Dialogues in Pediatric Urology. 2002;25:7–8
  19. Krahn GL, Hallum A, Kime C. Are there good ways to give ‘bad news’?. Pediatrics. 1993;91(3):578–582
  20. Wilson BE, Reiner WG. Management of intersex: a shifting paradigm. The Journal of Clinical Ethics. 1998;9(4):360
  21. Slijper FM, Frets PG, Boehmer AL, et al. Androgen insensitivity syndrome (AIS): emotional reactions of parents and adult patients to the clinical diagnosis of AIS and its confirmation by androgen receptor gene mutation analysis. Hormones Research. 2000;53(1):9–15
  22. Lycett E, Daniels K, Curson R, et al. School-aged children of donor insemination: a study of parents' disclosure patterns. Human Reproduction. 2005;20(3):810–819
  23. MacCallum F, Golombok S. Embryo donation families: mothers' decisions regarding disclosure of donor conception. Human Reproduction. 2007;22(11):2888

PII: S1521-690X(09)00145-6

doi: 10.1016/j.beem.2009.11.004

Best Practice & Research Clinical Endocrinology & Metabolism
Volume 24, Issue 2 , Pages 187-195 , April 2010

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